Resource Links

The following lists represent a partial sampling of the online resources available to the victims of mesothelioma and other asbestos-related diseases. The list is constantly being updated, so check back periodically for new links and websites.

Government Websites on Asbestos and Mesothelioma

Agency for Toxic Substance & Disease Registry (ATSDR) website on asbestos - http://www.atsdr.cdc.gov/asbestos

ATSDR site reports on Libby, Montana and related exposure sites – http://www.atsdr.cdc.gov/asbestos/sites/national_map/index.html

Consumer Product safety Commission: asbestos sources in the home - http://www.cpsc.gov/cpscpub/pubs/453.html

Environmental Protection Agency (EPA) asbestos website - http://www.epa.gov/asbestos

EPA state asbestos contacts list - http://www.epa.gov/asbestos/statecontacts/index.html

Health and Safety Executive (independent British agency) asbestos website - http://www.hse.gov.uk/asbestos

National Cancer Institute (NCI) - http://www.cancer.gov

NCI mesothelioma gateway - http://www.cancer.gov/cancertopics/types/malignantmesothelioma

NCI asbestos fact sheet - http://www.cancer.gov/cancertopics/factsheet/Risk/asbestos

Occupational Safety and Health Administration (OSHA) asbestos website - http://www.osha.gov/SLTC/asbestos

Asbestos and Mesothelioma Victims Advocacy Groups

Asbestos Disease Awareness Organization (http://www.asbestosdiseaseawareness.org)

Environmental Working Group asbestos pages (http://www.ewg.org/sites/asbestos/facts)

International Mesothelioma Program (http://www.brighamandwomens.org/.../mesothelioma/default.aspx)

National support groups

Some excellent organizations provide support for people with life-threatening illnesses and their families:

CaringBridge (www.caringbridge.org) – Offers free patient websites to connect people experiencing a significant health challenge with families and friends, helping patients during their health journeys.

National Hospice and Palliative Care Organization (www.nhpco.org)

Supportive Care Coalition (www.supportivecarecoalition.org) – Catholic advocacy organization for palliative care and end-of-life care.

National cancer organizations

Some of the best work in the fight against mesothelioma is being done by organizations that focus on all types of cancer, not just mesothelioma.

American Cancer Society (http://www.cancer.org)

Cancer Fund of America (www.cfoa.org)

Cancer Hope Network (http://www.cancerhopenetwork.org)

Lung Cancer Alliance (www.lungcanceralliance.org)

LUNGevity Foundation (http://events.lungevity.org/site/PageServer)

National Foundation for Cancer Research (http://www.nfcr.org)

State cancer organizations

Many state and local cancer-related charities exist to provide treatment, support and research funds in the battle against cancer. Many of these were formed to honor individuals who died of cancer. Potential doors to these non-profits are advised to research both the programs that the organizations sponsor and the percentage of their contributions that go to those programs:

Alabama

Alabama Foundation for Oncology 205-877-2224

Cancer Wellness Foundation of Central Alabama 334-273-2279

Alaska

First City Council on Cancer 907-225-7335

Alaska Cancer Care Alliance 907-257-9837

Arizona

Sail Through Cancer Foundation 602-370-2001

Desert Cancer Foundation of Arizona 480-763-6897

Rock Away Cancer Foundation 602-758-0787

Lucy B. Drewes Rare Cancer Foundation 888-412-5829

Arkansas